Supplemental Websites for this Chapter

Information to Supplement this Chapter from the Authors

Other Websites Pertinent to this Chapter

Websites from this Chapter in the Text

Websites Referred to in the Text of this Chapter

Chapter References for this Chapter that Are Online

Onsite Information to Supplement the Text

It has been brought to our attention that there is some confusion about the use of the term "electronic health record" in the "Point." The accepted terminology is still electronic medical record (EMR) for an electronic record for just one agency (including all entities such as other hospitals, VNAs etc.) and electronic health record (EHR) for electronic records that are shared between agencies. Other terminology, such as electronic patient record (EPR) is not accepted by the NAHIT (http://www.nahit.org/pandc/press/pr5_20_2008_1_33_49.asp). Using EPR, or confusing the EMR with the EHR, can only provide points of confusion for learners and others. The ultimate goal of the US government is that EMRs will morph to EHRs.

Offsite Websites That Are Pertinent to This Chapter

Consumer Issues (Chapter 15)
e-Encounters
Online Healthcare Communications
Personal Health Records
Smart Cards

e-Encounters

AHIMA Practice Brief (2003). E-mail as a Provider-Patient Electronic Communication Medium and its Impact on the Electronic Health Record.
http://library.ahima.org/xpedio/idcplg?IdcService=GET_HIGHLIGHT_INFO&QueryText=
(((xCategory+%3Csubstring%3E+%60Health+Records+Management%60+%3CAND%3E+
xSubject+%3Csubstring%3E+%60Privacy%60)+%3COR%3E+(xCategory+%3Csubstring%3E+
%60Technology%60+%3CAND%3E+xSubject+%3Csubstring%3E+%60Security%60))+
%3CAND%3E+xSource+%3CStarts%3E+%60AHIMA+Practice+Brief%60+%3CAND%
3E+dSecurityGroup+%3Cmatches%3E+%60Public%60)++%3CAND%3E++
(xPublishSite%3Csubstring%3E%60BoK%60)&SortField=xPubDate&SortOrder=
Desc&dDocName=bok1_021588&HighlightType=HtmlHighlight&dWebExtension=hcsp

Bagchi, A., R. af Ursin, et al. (2009). "Focus on Quality: Communication in the Health Care Encounter [Electronic at https://www.policyarchive.org/bitstream/handle/10207/15734/healthcareencounter.pdf?sequence=3]." Issue Brief / Mathematica Policy Research 2009(5, February).

Bunn, Jennifer (2008, July 13) E-Visits: The Next Big Thing in Healthcare?
http://www.citizeneconomists.com/blogs/2008/07/13/medicare-to-reimburse-e-visits/

Dermatology e-Visits. Report of a web-based system that allowed patients with facial acne to have follow-up visits using a customized online questionnaire (‘e-visit’) and by uploading digital images of their faces. Includes a video.
http://www.connected-health.org/programs/e-visits/center-for-connected-health-models-of-care/dermatology-e-visits.aspx

Guidelines for e-Visits from the American Academy of Family Physicians.
http://www.aafp.org/online/en/home/policy/policies/e/evisits.html

McDonald, K., J. Case, et al. (2001). "e-Encounters." Retrieved June 3, 2009, from http://www.chcf.org/documents/hospitals/EEncounters.pdf.

Online Healthcare Communications

eRisk Working Group on Healthcare's Guidelines for Online Communications (2002). Covers ordinary and fee-based email communication.
http://www.medem.com/node/1058

Guidelines for the Clinical Use of Electronic Mail with Patients. Includes AMA Guidelines.
http://www.amia.org/mbrcenter/pubs/email_guidelines.asp

International Society for Mental Health Online. The home page of this group. Follow the links in the left hand green column especially the Clinical Case Study group under Projects. Under White Papers and resources is a link to Myths and Realities of Clinical Work which pertains to the use of the Internet in Therapy, and a list of abstracted articles. Best viewed with IE. Although if using Firefox, the choices are easier to understand, after clicking on a choice, you must scroll down to see it.
http://www.ismho.org/

Metanoia. A Web site that offers a chance to talk with a therapist online, hints for choosing an online therapist, and help if you feel suicidal.
http://www.metanoia.org/

Personal Health Records

American Health Information Management Association page on understanding and managing your personal health information. Provides step by step instructions to creating a personal health record.
http://www.myphr.com/your_record/guide.asp

Articles discussing Personal Health Records. Not only provides articles, but links to sites that offer consumers a chance to create, review, annotate, or maintain a record of any aspect(s) of their health condition.
http://www.informatics-review.com/records.html

Children's Hospitals and Clinics in Minneapolis, MN provides parents a way to record pertinent medical information. It is then easily available to the parent. The information is entered on a secure site. Good to refer to parents.
http://www.childrenshc.org/cmo/

Cronin, Carol (2006). The Quality of Health Care: Personal Health Records: an Overview of What Is Available To the Public. From the American Association of Retired People (AARP). A scan of the PHR marketplace between April and November 2005 exploring how the PHRs are accessed by users (e.g., Internet-based or PC-based); subscription costs; the content of the PHR; and privacy policies applicable to each product. Identification of questions about PHR products that need to be addressed in the future, such as the experience of users with particular products and the need for further investigation of privacy policies and data security; she recommends that PHR development and use should be monitored to learn how/whether consumers use this type of decision tool. Download the report from this site.
http://www.aarp.org/research/health/carequality/2006_11_phr.html

Detmer, D., M. Bloomrosen, et al. (2008). "Integrated Personal Health Records: Transformative Tools for Consumer-Centric Care." BMC Medical Informatics and Decision Making 8(1): 45. [Electronic version at http://www.biomedcentral.com/1472-6947/8/45]

Fox, L. A. (2004, October). Health Record Paradigm Shift: Consumer Health Informatics [Electronic Version at http://library.ahima.org/xpedio/groups/public/documents/ahima/bok3_005546.hcsp?dDocName=
bok3_005546]. IFHRO Congress & AHIMA Convention Proceedings. "Transforming all paper medical records to EHRs, launching the NHII, and creating a PHR for every consumer is no less of a paradigm shift for the healthcare industry than when the new world explorers proved the earth was round, not flat!"

Google vs. Microsoft in personal healthcare records. Discussion of the approaches of both of these giants in providing online access to one's healthcare information.
http://venturebeat.com/2007/08/14/google-vs-microsoft-in-healthcare-records/

Declaration of Health Data Rights. Google and Microsoft have both declared their support for no cost patient access to their health data and the right to determine who sees it. Missing from this declaration is any statement about privacy.
http://www.healthdatarights.org/home

Personal Health Records and Personal Health Records Systems. A Report Recommendation from the National Committee on Vital and Health Statistics.
http://www.ncvhs.hhs.gov/0602nhiirpt.pdf

Proceedings of the Post Conference of NI 2009 Reports on Personal Health Records. This compendium is a full treatise on many of the issues surrounding personal health records. Highly recommended. (Added December 8, 2009)
http://www.uku.fi/vaitokset/2009/isbn978-951-27-1321-9.pdf

Barriers to Personal Health Records

Lober, W., B. Zierler, et al. (2006). Barriers to the use of a Personal Health Record by an Elderly Population [Electronic Version at http://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=1839577]. AMIA Annual Symposium.

Tang, P. C., J. S. Ash, et al. (2006). "Personal health records: definitions, benefits, and strategies for overcoming barriers to adoption." Journal of the American Medical Informatics Association 13(2): 121-6. [Electronic Version at http://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=1447551]

Designing Personal Health Records

Bagchi, A., L. Moreno, et al. (2007). "Considerations in Designing Personal Health Records for Underserved Populations [Electronic at http://www.mathematica-mpr.com/publications/pdfs/hlthcaredisparib1.pdf]." Issue Brief / Mathematica Policy Research 2007(1).

Smart Cards

German Government Unveils Smartcard Costs. 20 Mar 2008. If you read German, there is a link to the full report, this site, however, is in English.
http://www.ehealtheurope.net/news/3580/german_government_unveils_smartcard_costs

Smart Card Alliance. Links to reports about smart cards.
http://www.smartcardalliance.org/pages/smart-cards-applications-healthcare

Websites Referred to in Text of Chapter

Government Privacy Review. http://www.hhs.gov/healthit/ahic/materials/01_07/ce/PrivacyReview.pdf

Project Health Design. http://www.projecthealthdesign.org/

The American Academy of Family Physicians' Center for HIT. (Change from text)
http://www.centerforhit.org/online/chit/home/project-ctr/gov-advocacy/advocating.html

Personal Health Record (PHR) Resource Center. http://www.americanheart.org/presenter.jhtml?identifier=3056646

References in this Chapter that are Online

Alliance, S. C. (2006, February). Smart card applications in the U.S. healthcare industry. Retrieved November 21, 2008 from http://www.smartcardalliance.org/pages/publications-healthcare-industry

Barnhart, J. E. (2003). The Evolving Standards for Smart Health Cards. Retrieved November 21, 2008, from http://www.icma.com/info/evolvingstds1204.htm

Brooks, R. G., & Mencahemi, N. (2006). Physicians’ Use of Email With Patients: Factors Influencing Electronic Communication and Adherence to Best Practices. Journal of Internet Medical Research [Electronic Journal http://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=1550692], 8(1).

California Health Care Foundation. (2001, November). E-Encounters. I-Health Reports. Retrieved November 21, 2008, from http://www.chcf.org/documents/hospitals/EEncounters.pdf

Car, J., & Sheikh, A. (2004). Email consultations in health care: 1—scope and effectiveness [Electronic version at http://www.bmj.com/cgi/content/full/329/7463/435]. British Medical Journal., 329, 435-438.

Center for Studying Health System Change. (2006, September). Data Bulletin No. 32: Physicians Slow to Adopt Patient E-mail. Retrieved November 21, 2008, from http://www.hschange.org/CONTENT/875/

Endsley, S., Kibbe, D. C., Linares, A., & Colorafi, K. (2006, May). An Introduction to Personal Health Records. Family Practice Management. Retrieved November 21, 2008, from http://www.aafp.org/fpm/20060500/57anin.html

eHealth News EU. (2 November, 2007). St. Lucas Andreas Hospital to Start Home Monitoring of Cardiac Patients. Retrieved November 21, 2008, from http://www.ehealthnews.eu/content/view/805/26/

EurActiv. (2007, December 6). ICT networks prerequisite for healthcare at home. Retrieved November 21, 2008, from http://www.euractiv.com/en/health/ict-networks-prerequisite-healthcare-home/article-168901

Foundation, M. (2005). Attitudes of Americans Regarding Personal Health Records and Nationwide Electronic Health Information Exchange. Retrieved November 21, 2008, from http://www.phrconference.org/assets/research_release_101105.pdf

Guidelines for Physician-Patient Electronic Communications. (2008, February 27). Retrieved November 21, 2008, from http://www.ama-assn.org/ama/pub/category/2386.html

Harris Interactive. (2004, August 10). Two in five adults keep personal or family records and almost everybody thinks it is a good idea. Retrieved November 21, 2008, from http://www.harrisinteractive.com/news/newsletters/healthnews/
HI_HealthCareNews2004Vol4_Iss13.pdf

Harris Interactive Inc. (2002, April 10). Patient/Physician Online Communication: Many patients want it, would pay for it, and it would influence their choice of doctors and health plans. Retrieved November 21, 2008, from http://www.harrisinteractive.com/news/newsletters/healthnews/
HI_HealthCareNews2002Vol2_Iss08.pdf

HIMSS Electronic Health Records Vendors Association. (2006, October). HIMSS EHRVA definitional model and application process. Retrieved November 21, 2008, from http://www.himssehrva.org/docs/EHRVA_application.pdf

IEEE. (2004, June 17). Voluntary health care identifier. Retrieved November 21, 2008 from http://www.ieeeusa.org/policy/positions/healthcareidentifier.html

Internet World Stats. (2007, April 12). United States of America Internet Usage and Broadband Usage Report. Retrieved March 22, 2008, from http://www.internetworldstats.com/am/us.htm

Lecker, R., Armijo, D., Chin, S., Christensen, J., Desper, J., Hong, A., et al. (2007, January 5). Review of the Personal Health Record (PHR) Service Provider Market. Retrieved November 21, 2008, from http://www.hhs.gov/healthit/ahic/materials/01_07/ce/PrivacyReview.pdf

MacDonald, K. (2003, Nov 18). Online patient-provider communication tools: An overview. Retrieved November 21, 2008, from http://www.chcf.org/documents/ihealth/PatientProviderCommunicationTools.pdf

Markle Foundation Connecting for Health. (2003, July 1). Final Report, Personal Health Working Group. Retrieved November 21, 2008, from http://www.markle.org/downloadable_assets/final_phwg_report1.pdf

National Alliance for Health Information Technology. (2008, March 24). Defining Key Health Information Technology Terms. (Change from text) Retrieved November 6, 2009, from
http://healthit.hhs.gov/portal/server.pt/gateway/PTARGS_0_10741_848133_0_0_18/10_2_hit_terms.pdf

National Committee on Vital Health Statistics. (2006, February). Personal Health Records and Personal Health Record Systems. Retrieved November 21, 2008 from http://www.ncvhs.hhs.gov/0602nhiirpt.pdf

Neame, R. (1997). Smart cards--the key to trustworthy health information systems [Electronic version retrieved September 1, 2008 from http://www.bmj.com/cgi/content/full/314/7080/573]. British Medical Journal, 314(7080), 573-577.

Pizzi, R. (2007). National Alliance For Health IT endorses voluntary patient identifiers. Retrieved November 21, 2008, from http://www.healthcareitnews.com/story.cms?id=8305

Smart Card Alliance. (2003, September). HIPAA Compliance and Smart Cards: Solutions to Privacy and Security Requirements. Retrieved November 21, 2008, from http://www.smartcardalliance.org/pages/publications-hipaa-report

Smart Card Alliance. (2006, February). Smart card applications in the U.S. healthcare industry. Retrieved November 21, 2008, from http://www.smartcardalliance.org/pages/publications-healthcare-industry

Created June 3, 2009